It's the little moments that define us. They define our strengths and they also define our weaknesses. I planned to write about this topic a year ago, when we still lived in our two-story home in the city. We have since moved into our custom designed dream home. This is a dream home because I… Continue reading “Come Upstairs, Mommy.”
I’ve been thinking a lot about something for some time. I belong to a terrific network of those affected by Emery-Dreifuss Muscular Dystrophy though Facebook. I joined the group as an adult who has lived my entire life having Muscular Dystrophy. I was finally diagnosed with an exact type just a few years ago. This… Continue reading Dear Parents
Our homeschool will officially start on June 4th with Form 1B, following the Charlotte Mason philosophy. This will be our first year with a packed curriculum covering a full range of subjects, year-long focus, and more priority on academics. FORM WHAT? Welcome to the world of Charlotte Mason. Form 1B is equivalent to 1st grade. … Continue reading Getting Ready for Charlotte Mason
I'm one to live in the future. I'm always planning, thinking, and dreaming about what's coming next. That's not what I recommend and working on mindfulness is a new goal of mine. Perhaps this has developed from the need to always plan and anticipate. No matter what the day holds, everything to be accomplished must… Continue reading Making It Through the Day
"I'm a Mutant without any super power." That's the little anecdote I often say to lighten the mood when talking about my medical condition. Until early 2011, I had lived my entire life with a general diagnosis, determined by symptoms and assumptions. Limb-Girdle Muscular Dystrophy. I hit milestones as a baby; I was an… Continue reading A Mutant Without Super Powers
"Use it or lose it" could possibly be one of the most damaging ideas out there to people with a degenerative muscle disease. The sentiment means that if you aren't moving, you will lose the ability to move. It's not wrong. Inactivity can cause atrophy. I would guess that anyone who has had surgery or… Continue reading Use It or Lose It
Welcome to A Life Adapted, launching 5.1.17. Join us in conversations about life with a disability, creating a homestead, and homeschooling with the Charlotte Mason philosophy. Living with a rare disability, I'm not leaving anything else to chance.