It's the little moments that define us. They define our strengths and they also define our weaknesses. I planned to write about this topic a year ago, when we still lived in our two-story home in the city. We have since moved into our custom designed dream home. This is a dream home because I… Continue reading “Come Upstairs, Mommy.”
I’ve been thinking a lot about something for some time. I belong to a terrific network of those affected by Emery-Dreifuss Muscular Dystrophy though Facebook. I joined the group as an adult who has lived my entire life having Muscular Dystrophy. I was finally diagnosed with an exact type just a few years ago. This… Continue reading Dear Parents
I'm one to live in the future. I'm always planning, thinking, and dreaming about what's coming next. That's not what I recommend and working on mindfulness is a new goal of mine. Perhaps this has developed from the need to always plan and anticipate. No matter what the day holds, everything to be accomplished must… Continue reading Making It Through the Day
"I'm a Mutant without any super power." That's the little anecdote I often say to lighten the mood when talking about my medical condition. Until early 2011, I had lived my entire life with a general diagnosis, determined by symptoms and assumptions. Limb-Girdle Muscular Dystrophy. I hit milestones as a baby; I was an… Continue reading A Mutant Without Super Powers
A Life Adapted 