I'm one to live in the future. I'm always planning, thinking, and dreaming about what's coming next. That's not what I recommend and working on mindfulness is a new goal of mine. Perhaps this has developed from the need to always plan and anticipate. No matter what the day holds, everything to be accomplished must… Continue reading Making It Through the Day
Tag: EDMD
A Mutant Without Super Powers
"I'm a Mutant without any super power." That's the little anecdote I often say to lighten the mood when talking about my medical condition. Until early 2011, I had lived my entire life with a general diagnosis, determined by symptoms and assumptions. Limb-Girdle Muscular Dystrophy. I hit milestones as a baby; I was an… Continue reading A Mutant Without Super Powers
Use It or Lose It
"Use it or lose it" could possibly be one of the most damaging ideas out there to people with a degenerative muscle disease. The sentiment means that if you aren't moving, you will lose the ability to move. It's not wrong. Inactivity can cause atrophy. I would guess that anyone who has had surgery or… Continue reading Use It or Lose It
A Life Adapted 